Tag Archives: T1d

Peanut Butter May Still Be the Death of Me

Posted in Body Image, Diabetes, Exercise, Food, Personal, Type 1 by

I woke up at 2:30 a.m. shaking, while Cosmo, my continuous glucose monitor (CGM) vibrated and beeped at me from the nightstand to my right. I pushed its button, acknowledging the warnings, and saw the screen light up with the number 45.

I didn’t need to check my blood sugar level with my glucometer. My heart was pounding, and the room was blurry. I thought of the orange juice in the fridge but decided to go for the Reese’s egg in the freezer. I knew from recent calculations that this chocolate-covered, peanut-butter filled egg contained 25 grams of carbohydrates (mostly sugar).

That should do it, I thought. Norm, my two-year-old tabby walked into my bedroom and sat on the floor in front of my bed with a quizzical look. The egg didn’t feel like enough even though I knew it was. I checked my insulin pump, which confirmed there was no active insulin in my system. My basal rate was set to decrease from .600 units to .400 at 3 a.m. to account for those middle-of-the-night lows.

I knew I would be okay, but I was still shaking, and my heart was pounding. My body felt weak and depleted, and I craved sugar – the sustenance necessary for instant energy. Earlier that day I had made the mistake of buying a few bags of Reese’s pieces eggs, now 50 percent off in the post-Easter haze. Continue reading →

The Future of Diabetes Management

Posted in Cost, Diabetes, Insurance, Medical Supplies, Research, Type 1 by

“I imagine being diagnosed as an adult would be harder because you remember life without it.”

“Yeah.” I nodded at the woman to my left, mother to an 11-year-old with Type 1 diabetes (T1D).

We were both first-timers to the JDRF TypeOneNational 2015 DC Research Summit yesterday. While many parents of children with diabetes attended the day-long event, I was among some of the adults who had been managing this disease for years.

I’m about to celebrate my sixth anniversary with this disease, one year closer to a decade. It’s hard to believe I’ve been managing the disease this long – it’s even harder to believe that I have many years to go. But like speaker Tom Brobson, national director of research investment opportunities at JDRF, reminded us, if we had all been diagnosed one hundred years ago, we wouldn’t have survived a month.

I’d like to believe on the starvation diet I would have lasted a little longer, but he was right about one thing – we’ve come a long way technology-wise. And for that I am thankful. William Tamborlane, chief of pediatric endocrinology at Yale University and deputy director of the Yale Center for Clinical Investigation, familiarized us with the “blue brick,” the first insulin pump device introduced in 1979. It would take another 20 years before the insulin pump would actually take off.

And Jessica Roth, senior director of health policy at JDRF, reminded us of the importance of advocacy. It’s not enough to have all these research advances such as ViaCyte, Smart Insulin, and the artificial pancreas without the ability for people living with this disease to have access to these treatments. It still pains me that Medicare refuses to cover the continuous glucose monitoring (CGM) system for those over 65. Continue reading →

Basal and Bolus

Posted in Diabetes, Exercise, Personal, Type 1, Women's Health by

Basal and Bolus are my lifeline, but they’ve recently hit puberty, and their hormones and emotions are all over the place. This does not make life easier for me, and no matter what I do, they don’t listen. I guess I should respect their independence, but sometimes I miss the obedient rates that never questioned me.

I try to be the healthiest person I can be, but there are days when the diabetes takes over. It’s not necessarily a result of anything wrong I’ve done in managing it, but whether it’s stress or hormones, sometimes my blood sugar levels have a mind of their own.

In a State of Flux

Blacktip Reef with wavy blue lineYesterday was one of those days. Since I went off birth control six months ago, I’ve struggled to balance my basal and bolus rates (basal is the long-lasting insulin I take continuously throughout the day; bolus is the fast-acting insulin I take before meals). My insulin sensitivity is constantly fluctuating. Continue reading →

Weightless

Posted in Body Image, Diabetes, Exercise, Mental Health, Personal, Type 1, Women's Health by

Sometimes it can be one look in the mirror. Sometimes it can be the tightening feeling of a pencil skirt. Sometimes it can be that bloated feeling right before the monthly cycle. Sometimes it can be the fact that one hasn’t been on a date in six months. Sometimes it can be the wintry mix outside and the mood it brings.

But whatever it is, it’s not good. It leads to a feeling of failure, of powerlessness over the fate of one’s body. All of those negative, self-critical thoughts come flooding back, and no matter how bright the sun peaks through the blackout curtains, the darkness overwhelms the room.

People asked how it is I lost weight in the past year. My response was always “I don’t know.” A five-hour daily commute. A failed relationship. Depression. Disease. I tried to believe it’s because I finally had a good body image. I listened to my diabetes, and I stayed active (this mostly constituted walking a mile to and from the train every day). Continue reading →

An Online Realm of Little Freaks

Posted in Diabetes, Exercise, Personal, Type 1 by

“Hey u little freak.”

[Insert phone number here]

Everyone online boasts about traveling the world so it seems only appropriate I should post a picture in Frederick, MD.

Everyone online boasts about traveling the world so it seems only appropriate I should post a picture from Frederick, MD.

I have entered the world of online dating. Up until last night, I hadn’t (figuratively) met too many weirdos or creepers as so many warned me about, although within the first 24 hours of my profile going live, I received multiple “Hey beautiful” messages. Come on guys, let’s be creative. And girls, don’t ever respond to objective one-liners like that.

It’s a lot more work than I anticipated and a bit overwhelming. Sometimes after skimming profile after profile, it’s hard not to be superficial. I’ve decided I have certain criteria, too. After two failed long-term relationships back-to-back, I’m not willing to put myself in certain situations again. I no longer believe that they will change. Continue reading →

The Silver Lining Effect

Posted in Diabetes, Exercise, Personal, Type 1 by

I’m a moody person, usually greatly affected by hormone levels. But even though I chart this for my own benefit, sometimes when I expect to be down, sad, and irritable, I’m upbeat and hopeful. I call these fortuitous moments because I’m not pulled in by my own confirmation bias. And I’m not intentionally looking for a silver lining, but it’s there like the alarm clock of my cat’s meow at 7am.

This week hasn’t been easy, either. After coming down off the high of traveling for the holidays and consuming way too many sweets, it seems my body is trying to punish me. From a cold to an infection to now a clogged tear gland on my left eye, I wanted to throw up my hands on Monday and go home.

And when I got lost for the tenth time around Dupont Circle (these DC traffic circles are the bane of my directional existence) trying to meet my friend for dinner in 20 degree temperatures, I gave up on this week. But then I got to see my one of my best high school friends who was in town for a series of events for law school. Continue reading →

Christmas in Cookietown

Posted in Diabetes, Exercise, Food, Travel, Type 1 by

Photo-Dec-30,-9-29-39-PMThere’s something to be said about being diagnosed with a chronic condition as a young professional. For one, you skip the growing pains and hormonal changes of adolescence. Two, your family never has to reconcile their lifestyle habits as a result of it so when you return home for the holidays, there is no reminder of your disease.

In fact, every sweet-toothed temptation surrounds you. It’s not inconsiderate. It’s nice, actually. Your family may have not changed their holiday menu line-up based on your diabetes, but that just means for once a year, you can splurge and forget you have this haunting disease.

That is until a few days later when the sight of another chocolate truffle makes your blood sugar soar. Your aunt offers you a piece of pumpkin pie, and when you check your continuous glucose monitor (CGM) receiver to see that your blood sugar has been a steady 250 for the past two hours, you politely decline. You fall asleep on the couch, overwhelmed with exhaustion, but really, your body is suffering the effects of long-term high blood sugar. You haven’t been running in a week, and the short walks with the dog in 20-degree temperatures are not enough to increase your energy levels.

You suddenly miss green vegetables and juice. Every time your blood sugar drops as a result of overestimating your insulin to carb ratio, you run for the kitchen because across the green marble countertop are rows of cookies, some homemade and some store-bought. You start with chocolate chip, then pecan sandies, and finally fudge. You feel nauseas, and even though your blood sugar is no longer low, it doesn’t take it long before it soars high. Continue reading →

World Diabetes Day: One Hope

Posted in Diabetes, Personal, Type 1 by
Photo courtesy of Hilary Brown

Photo courtesy of Hilary Brown

Today is World Diabetes Day, a day led by the International Diabetes Federation (IDF) to raise awareness and advocate for this disease. Globally, there are 382 million people living with diabetes. The U.S. is one of the top 10 countries for the number of people with diabetes, which is about 24 million. The IDF estimates that worldwide the numbers will continue to increase so that by 2035, 592 million people will be living with this disease.

So what is diabetes, and why should we be worried? Put simply, diabetes is when the body’s pancreas stops producing insulin, which we need to digest our food for energy. Type 1, the version I have, is an autoimmune disease, where a person’s pancreas stops producing insulin completely, and one must take shots of insulin to live. Type 2, the version more well-known, is where a person’s pancreas is still producing some insulin, but not enough to convert all of the food into energy.

According to the Juvenile Diabetes Research Foundation (JDRF), the largest global funder for Type 1 diabetes research, as many as three million people in the United States have Type 1 diabetes (15 percent of which are children). Like JDRF says, insulin is not a cure, and they are working to change Type 1 to type none.

One can hope. Continue reading →

A Community of T1D Veterans

Posted in Diabetes, Type 1 by

This Veterans Day I would like to highlight something a little different on Sugarcoated – the concept of diabetes veterans.

I was diagnosed late in life at 22 (well for Type 1s, that is). I had missed out on growing up with the disease, among the support of family, friends, and fellow juvenile diabetics. Yes, I say “missed” because ever since I was diagnosed, I’ve felt largely excluded from the Type 1 community. Maybe it’s why I’ve never involved myself with organizations like the Juvenile Diabetes Research Foundation (JDRF) until now.

Because you see, I had a different experience than most Type 1s I meet. They were diagnosed at six or 13 and remember attending diabetes camp and having their moms pack them juice boxes for even the shortest trips. I’m not saying their diagnosis wasn’t daunting or depressing because after all, it’s still an incurable chronic disease. But in growing up with it, they developed a stronger support system. Through camps and fundraising events, they met other diabetics like them. They became friends; they shared stories; they didn’t feel alone. Continue reading →

National Diabetes Month: Wearing Blue Proudly

Posted in Diabetes, Medical Supplies, Type 1 by

Carb-worthy ecardNovember marks National Diabetes Month. It includes World Diabetes Day, which happens to fall on the anniversary of insulin discoverer Frederick Banting’s birth on November 14. Yesterday was T1Day, a day for the Type 1 diabetes community to come together and not only raise awareness for our disease, but to provide support.

Yesterday was also my first inauguration into the world of Type 1 diabetes. I have been a Type 1 diabetic for the past five years, diagnosed late at 22, and in that time, I’ve only met a few other diabetics like myself. But yesterday, I volunteered at the Juvenile Diabetes Research Foundation’s annual Hope Gala in DC.

From the start, one of the fellow volunteers asked me if I had diabetes. I noticed the pump attached to her waistband, and for the first time in my life, I truly felt a part of a community. I explained that I had no family history and that I was diagnosed as an adult, as opposed to most Type 1’s who are diagnosed in childhood. But even so, we talked about insulin pumps, about exercising, about being diagnosed, and the everyday balance. Continue reading →