Today the FDA approved the first-ever hybrid closed loop insulin delivery system (aka the artificial pancreas). When I read JDRF’s news release I certainly felt inspired and excited for thousands of Type 1 diabetics around the world. Continue reading
I’ve been thinking about my third tattoo for a few years now. Since I adopted the rose tattoo on my back in spring of 2011, I played around with the idea of having a few stars on the top of my foot. At first, I just thought the stars were beautiful. I loved my rose tattoo, a very traditional image but gorgeous nonetheless. But because these stars would be permanently attached to my body, in my opinion, they needed to have deeper meaning.
So what do the stars really represent?
Well, my favorite band is Stars. And lately I’ve become more intrigued with the known and unknown universe. I mean what does dark matter really encompass?
But more than that, when I was younger, and my parents were asked to pick a Disney song that represented me (the reason here is not relevant but let’s just say for fun), they chose, “When You Wish Upon a Star,” from Pinocchio. Why? Because they envisioned that one day, I would follow my dreams. Continue reading
Enjoy not knowing where life is going to take you.
Apparently I said this a few years back. I have no recollection, but often when I am giving advice to others (as I imagine most of us do), I say things I would never say to myself. And only recently have I learned to value all that I want to contribute and give to those around me and the world.
I don’t expect to be famous or rich. It’s never the life I envisioned for myself, but I always imagined I would give something back even if to those I didn’t even notice. That’s already happening. We are each impacting people we hardly know, maybe even people we’ve never met. We will never know the impact we’ve had, but we should learn to value that unknown impact. There is nothing wrong with me. There is nothing wrong with us.
Maybe we have characteristics and personalities that do not mingle with this society or its system? But that does not make us wrong. In fact, throughout most of history, that makes us visionaries. And I am not including anything that violates human rights or life itself. I am talking about those of us who maybe don’t fit in with the life society has drummed up for us. But we’re not backing down. We’re taking a different path. Continue reading
I stretch my legs and sprint down the paved path along the four-lane highway in Silver Spring, Maryland. The sun sets behind me, and the bugs eat at my exposed calves, but I relish this 70-degree temperature. After 5 miles of gravel pathways, wooden bridges, and cracked sidewalks, I only have one more uphill battle of this last mile to conquer.
And then my speed starts to wane. I can’t seem to muster the strength to push myself harder even on this decline. Something feels off. My muscles are tired and weak, and my heart rate is accelerated past the point of normal. I stop at the next intersection, and as the stoplight turns red, I look down at the phone strapped to my right bicep.
Low glucose alert – my Dexcom app reads. Continue reading
Today a doctor put a scalpel to the skin beneath my left bicep. She removed another birth control method, the last I will try for a while. And although the implant was the best I’ve had, after about six months, it interfered with a cycle that should come natural, and the consequences no longer seemed worth it.
Oh the things we women must endure.
But this isn’t just about reproductive rights for women. It’s about the child I am not ready to bring into this world. I am a Type 1 diabetic. I would not take reproduction lightly normally, but with a chronic disease that could do irreparable developmental damage if I’m not monitoring it carefully enough, I especially do not take it lightly.
After the application of a burning numbing agent, the doctor pierced my skin and opened the wound. I watched with a side view anxious to have this hole repaired. I knew I was making the right decision for myself and my body but I couldn’t help but be abhorred by the whole procedure. What was I doing to myself?
She used her gloved fingers to dig around beneath the skin, and what seemed like seconds turned into minutes. How big is this thing? She asked for help from her assistant. Is it stuck inside me? Will I never be free of this thing that can’t be more than the size of a blunt razor blade? But then I realized she was removing scar tissue from the implant. After all, it had been in my body for almost a year.
And then it was out. As thin as a paper clip, it was no bigger than my pinky finger. And to think of all the hassle that tiny strip caused. Incredible. Continue reading
I’ve been thinking about getting Norm a girlfriend or boyfriend (I’m leaning more towards boyfriend). Even though my roommate and I each work from home once a week (on different days), Norm has not been pleased with the 8+ hours he may spend alone each day (or at least that’s what his increased “launch attack” initiatives tell me).
And let’s be honest. This apartment is a kitten’s paradise. Norm can spend hours rolling around on the carpet, chasing his tail around the living room, hopping from chair to couch to table and back again, and climbing a vast array of window sills. In addition he likes to spend his days sunning in his tree or hiding on a shelf in one of two walk-in closets. He spends his evenings catching hair ties and mini soccer balls or dragging his “bird on a wire” toy from the closet archway to mom’s bed. Continue reading
His name is Gizmo. He’s a small thing, about the size of a pager, with charcoal skin…. Gizmo and I are attached by a long string, like an umbilical cord. He’s constantly pumping insulin. Sometimes, he moves to the comforts of my small stomach rolls. Sometimes, he rides along my back. He doesn’t enjoy the hard surface of my legs, and it feels uncomfortable when I tuck him under my arm.
Many of you may remember when Gizmo and I first met or you may remember this short introduction from my book Sugarcoated. But I first met Gizmo back in March of 2012 when I went from injecting myself with pens and needles every day to the transformative wonders of an insulin pump. With Gizmo I never had another hypoglycemic seizure, and I was better able to function on a daily basis without diabetes getting in the way.