Maybe I’m Just Looking for Small Fish and Crustaceans?

A few years ago, I visited the National Aquarium in Baltimore, Maryland. My brother and I stood by the Blacktip Reef exhibit, and the tan and black dotted fins of the zebra shark caught my eye. It seemed to be blind, and we watched as it banged its head against the coral over and over again. Then, it would rest its belly on the bottom for minutes at a time, exhausted from its seemingly fruitless expedition. I thought it was the funniest thing to witness.

But when I turned to the information on the zebra shark, I learned that the shark does this to hunt for small fish and crustaceans hiding within the coral. It doesn’t need to swim to breathe so it rests on its belly in between hunting sessions.

Earlier today, I felt exhausted, too, from seemingly banging my head against the wall over and over again for the past seven months. I started to wonder if I was perpetually depressed due to the anxiety induced by our current political and health care climate. It was even starting to manifest itself in physical form – I’d had ongoing headaches and heartburn for weeks. Continue reading

I Have Hope

Today, the Senate proposed a revised version of a new health care bill that makes me want to run for some hidden woodland area and never return. I literally had the thought that maybe it would actually be better if I killed myself than live through another four years of health coverage trauma.

Don’t worry. I’m not having suicidal thoughts, and I definitely want to see what else life has to offer. But I do worry about my well-being. A few years ago, I was focused on the planet and what we could do for the environment for the sake of public health. And while I’m still passionate about those issues, it’s hard to be focused on the Earth when I can’t even guarantee my own life’s safety. Continue reading

For what it’s worth, you’re good enough

Sometimes, I think, I am not good enough.

Good enough for what?

For relationships, for success, for happiness, for a sense of belonging, for peace, for victory…

This does not mean I think any less of myself or judge those who care for and support me. But there are moments in my life when I think I am starting to fall towards rock bottom, and I question my own worth. I’m not even sure where these moments arise or where they find renewal. But every so often, I am hit with a wave of emotion, and I buckle down and cry.

I throw a pity party, for sure. But I also question the point of moving forward. This type of criticism is what my life coach likes to call my “gremlins.” I like that term. I imagine some small hairy green monster – quite the opposite of the cute Gizmo from Gremlins – and I think, I am stronger than you. There is no reason I should let you get the better of me. Continue reading

Here We Go Again

This past week, I visited my endocrinologist. My lab results looked good. I had an A1C of 6.0 (126 mg/dl – this is the target for those with Type 1 diabetes).

An A1C blood test provides insight into a person’s average blood sugar levels over a three-month period. Anything over 7.0 (154 mg/dl) usually means a risk of diabetes. When I was diagnosed with Type 1, I had an A1C of 16.0 (420 mg/dl). The fact I hadn’t gone into complete renal failure still astounds me.

Six months ago, I switched jobs so I acquired new health insurance. And for the first time in four years, I was excited to ask for a new prescription for my test strips and insulin. I no longer had to go through Optum-Rx, a mail-delivery service, to receive 90-day supplies of my medical needs. I could finally return to the wonders of CVS.

A few days later, CVS notified me that my test strips were ready for pick up, but when I checked my online account, I saw that my insulin was listed as a “new prescription on file.” So, I called the pharmacy. Apparently to fill my order of Humalog insulin, my new insurance required I get a prior authorization from my doctor. Well, that was new. Continue reading

It Gets Worse Before It Gets Better

This past weekend, by all accounts, should have been a wonderful weekend. And in many ways, it was. I spent some quality time with cool friends, and I met some even cooler people. I finally visited the Big Apple and learned that Broadway is a street, not a place (this one may haunt me for a while).

new-york-city-skyscrapers

But while I was gallivanting through New York City completely overwhelmed yet in awe of Central Park, Times Square and the darkness of the skyscrapers, others were hurting. On Sunday, I received some heartbreaking news, and out of respect for the parties involved, I will not disclose here. But needless to say, it’s the kind of news that brings someone like me to tears on the spot.

And on that same day, a woman at a gas station banged a bathroom door into my head (on accident, of course, but it hurt like hell – I still have a tender bruise). The weather was raining and overcast, and we were at the beach. Mother Nature couldn’t have been crueler (okay, I suppose a hurricane would have done it). My blood sugar levels were all over the place — from severe highs to severe lows.

Physically, I felt depleted and weak. Emotionally, I was hurting. And I was fortunate I was surrounded by such amazing people who let me process my emotions in my own time and even acknowledge that while I wanted to blame myself, I had done my best to be the most supportive friend I could be, and that was enough. When I returned to the sunny skies of DC on Monday, I received more bad news. Continue reading

It’s the Little Jokes that Get You Through

Last week I wrote about the “art of practicing nothing” aka being present in the present moment. I’m sure there are folks who spend a lifetime mastering this skill, but as a recent neophyte to the practice, this is an almost impossible task to achieve. Even without my to-do lists and email/social media on my phone, I still found myself distracted by the littlest worries.

But nevermind the littlest worries. It’s hard to force myself to enjoy the “present” when I have 24/7 anxiety about my ability to survive in the coming years. And post-traumatic stress from previous failures at surviving. I read about suicides and drug overdoses on the daily, and then I read about another Type 1 diabetic dying from complications of the disease.

My life is on the line every day. I never get a day off from this disease. And sometimes it’s easiest to just ignore it so I can live my life, but then that’s when I’m most at risk. So where’s the balance? Where’s the fine line between safety and insanity? Continue reading

Practicing the Art of Nothing

When I was a little girl, I loved car rides. This was before I met Motion Sickness. My family used to take vacations in the summer, and we drove to our destination whether that be the six-hour ride to Smoky Mountains or the 14-hour trek to Disney World.

My dad played Golden Oldie’s from the radio or Disney tunes on cassette. My mom would drive, my dad would film, and my brother and I would be content in the backseat. I was overwhelmed by the imagery. I loved following the different shapes and colors of the trees, watching the yellow lines on the road become one and taking in all the makes and models of other vehicles on the highway.

I could sit for hours in silence, feeling the fresh air and letting the music provide a backdrop for whatever story I dreamed up. I gave those trees a soul, and while I didn’t know who else traveled on the roads with us, I somehow felt connected to them. I used my imagination to give them their own stories. It was where my creative spirit was born.

So why, as an adult, is it so hard for me to sit back and do nothing? Why can’t I just remain still for a moment and relish the world going by? Continue reading