30 Days With Diabetes: I Can’t Eat

So even though my CGM says my blood sugar has been around 170-190, when I got home tonight I checked it and realized it was 294.

And while I may be actually hungry, the truth is my hunger may only be attributed to my high blood sugar. And since I picked up sushi from Whole Foods (which tends to be full of carbs), I can’t realistically eat it until my blood sugar comes down. So I sit here and stare at my food and wish for a different life.

This post is part of my 30 Days With Diabetes series

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30 Days With Diabetes: Sometimes I Don’t Want To

Tonight, I decided I would take the night off – from work, freelance, writing, social obligations and yes, even diabetes. I noticed the tape holding my continuous glucose monitor sensor on was coming off and made a mental note to replace that tape so I could make it through the next two days until I changed my sensor (this is attached to my butt, by the way).

So rather than work out when I got home or prepare for a date or a social excursion with a friend, I had a glass of bourbon and watched one of my favorite films, Sherlock Holmes: A Game of Shadows. It was a most enjoyable evening. Norm even joined and slept through the festivities for a bit.

Because sometimes as much as I know I need to reflect on things or re-evaluate the priorities in my life, I need a break. I need a night where I can just be. To be honest, I don’t believe in an afterlife, and even though I constantly question the point to this existence, I want to enjoy it. And if I can’t find joy during the most tumultuous times, I know I won’t survive. So even when I’m at my worst, I look for those little glimpses of joy and remember that I can be happy, wherever I may be and whatever disease I may carry.  Continue reading

30 Days With Diabetes: This Is Your Life Now

Last night, I almost broke down in tears – the first of many signs that I’m stressed, maxed out and putting undue pressure on myself. It’s been a busy few weeks, to say the least.

A little more than nine years ago, I also felt broken. I was preparing to graduate college, move out on my own and start working full-time. And then I was diagnosed with Type 1 diabetes.

While lying in a hospital bed next to syringes and vials of saline solution (for practice), I remember telling my mom how much I had on my plate and that I didn’t have time for “this” – this being my newfound life partner, diabetes. In so many words, my mom replied: “Tracy, this is your life now. You can’t ignore it.”  Continue reading

30 Days With Diabetes: Why I Talk About It

I didn’t use to talk about my diabetes. I figured folks didn’t want to hear about it. I also didn’t want it to become a part of my every day.

But when I started this blog, I realized it is a part of my every day. No, it’s not my only identity and as someone so recently reminded me: it is not the most interesting thing about me.

I am more than Type 1 diabetes. I have 22 years that confirm this. By talking about it, I help to educate others about its existence and effects, but the truth is I write and talk about it to feel less alone. Continue reading

30 Days With Diabetes: Diabulimia Research

I’m not a stress eater. In fact, when I’m stressed, I typically lose weight from “not eating.” Back in 2014, when I was commuting 5.5 hours per day to and from Baltimore and DC and nearing the end of a long-term relationship, I dropped down to 118 pounds (my lowest adult weight to date).

Fortunately now, the people closest to me know this about me and are great about checking me on this matter. So is diabetes. Before (and even after) I was diagnosed with Type 1, I struggled with a positive body image. I engaged in unhealthy behaviors, and although never diagnosed, I exhibited the signs of an eating disorder.

Even when diabetes came along, this was a hard habit to break. I ended up developing a binge eating disorder because I resented diabetes for not allowing me to indulge in certain foods anymore, and then I started omitting insulin so I wouldn’t gain weight from the binge eating. This is called “Diabulimia.” It’s something I’ve written about before on this blog.  Continue reading

30 Days With Diabetes: Ketone Test Strips

After posting about testing my blood sugar levels with test strips and a glucometer, someone reached out to me and asked if it was possible to measure ketones with the same meter and test strips.

With diabetes, it’s important to test ketones when you’re sick or have high blood sugar to ensure your body doesn’t go into diabetic ketoacidosis (DKA). When I was diagnosed, I was given urine strips to test for ketones and never thought to question that method. Until now. Continue reading

30 Days With Diabetes: DIY Pancreas

In the 9 years since I’ve had Type 1 diabetes (T1D), it’s been amazing to see what parents of children with T1D have done to improve management of blood sugar levels. Well, I learned today that parents are now hacking into diabetes management systems and creating their own form of the artificial pancreas (at a much cheaper cost than the official FDA-approved $7,000 device).

And all of this because of a security slip-up in 2011 – when many Medtronic insulin pumps were left open to hackers and apparently do-it-yourself (DIY) parents. Some companies have now hired or consulted with those DIYers to improve products and share ideas. It’s hard to believe that I could one day owe my life to someone who had the guts to hack into an automated system and tinker.

As one parent said of parents with T1D kids, “They know their kids the best, and sometimes technology or medicine is slower and doesn’t know what we need as much as we do.”

Patient advocacy at its best.  Continue reading