Category Archives: Mental Health

The Neverending Ride: Six Years With Type 1 Diabetes

Posted in Cost, Diabetes, Medical Supplies, Mental Health, Personal, Type 1 by

I throw the covers off and stumble out of bed. I wipe the sleep from my eyes and look at my phone for the time. I check my CGM for my blood sugar level. I put on some pants and clip my insulin pump to the waist line.

You told me six years ago that we were going for a ride. I didn’t know then that the ride would never end. And for those six years, I’ve been searching for a way to get back home, but after all that I’ve experienced and all that I’ve seen, can I really go back?

Chocolate and White Cupcake

Today marks my six-year anniversary with Type 1 diabetes. Six years ago at this time I was waiting in the exam room of Xavier University’s health center for results on a severe skin rash. But the results of that skin rash, among other symptoms and an out-of-control blood sugar reading, pointed to Type 1 diabetes. I was admitted to the hospital a few hours later and so began my journey with this autoimmune disease.

My anniversary coincidentally follows #IWishPeopleKnewThatDiabetes Day (April 22, 2015). I felt a sense of solidarity with the diabetes online community as I read through the various hashtag tweets. And I feel like my small contribution to the day evinces how I truly feel about the disease and others’ perception of it.

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‘The Examined Life’ and the Printed Word

Posted in Cost, Diabetes, Mental Health, Personal, Travel, Type 1 by

Today marks the third and final day of The Examined Life Conference: The Writing, Humanities, and Arts of Medicine, hosted at the University of Iowa College of Medicine in Iowa City, Iowa.

Rare medical book textAmong the gorgeous 70-degree weather and the nostalgia of walking along the paved pathways of a college campus, in the last three days, I feel like I have trespassed on history, found a deeper self-identity with my chronic illness, tripped on the psychedelic words of poetry, and discovered a new direction for health care reform.

I admit I wasn’t familiar with the arena of narrative medicine before arriving here. In fact, I wasn’t sure what to expect coming from a creative writing background myself and only having been pushed into the field of health care by my disease. But amidst fellow creative writers and those managing their own chronic conditions were health care professionals writing about it. Some write about their own personal stories — others attempt to peel back the layers of patient stories.

For the first time since working with CancerFree KIDS back in Cincinnati, I felt the power of writing, not just for my own therapeutic means, but for those who may not know how to tell their story, but so desperately want to. And how that story can change the future of a system that currently encourages disparity, neglect, and hopelessness.

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Looking Back From 1993

Posted in Diabetes, Mental Health, Personal by

I’ve never seen anyone jump in front of a Metro train, but it seems to happen more frequently in the DC area than I would like to admit. And most times when it does, people grumble about the delays and inconvenience, myself included.

Sometimes, I think of what was going through that person’s mind. And when I walk down the stairs to the platform, and then along the raised, bumped edge to get through the crowd, I think how easy it would be to just fall or jump to my right. In a split second, I would be no more.

But then I think about the train driver – how they can see the entire scene play out, and there’s nothing they can do about it. If they try to brake, it may only put the passengers at risk, whereas the jumper knew the consequence of their actions. And even though the driver is not responsible, that is something they must take with them for the rest of their life.

Mental health, an often overlooked sector of health care, is so important to surviving the daily grind. It is why we shouldn’t take for granted that someone won’t jump in front of that train. And we should always ask why. When the mind starts to reason ending life, then it can reason a lot of things. Continue reading →

Diabetes Knows When I’m Stressed

Posted in Diabetes, Mental Health, Personal, Research, Type 1, Women's Health by

This past week has been one of the most stressful weeks for my physical and mental health probably since I completed grad school a few years ago. It didn’t help that it was preceded by hormonal blues and a delayed website launch. Among other things, my work life overpowered the rest of my life, making my ability to sustain personal goals nearly impossible.

And maybe it’s my own fault for putting too much on my plate personally? But I did this so that I would have a life outside of work and so that I could be happy. But my inability to have that personal life because of work obligations made me extremely unhappy and not the most joyous person to be around.

What was worse is that when I left the office on Friday, that stress left with me. I couldn’t get it out of my head and my dreams, and my roommate could tell you that when I was hounding the vacuum cleaner on Saturday, cussing up a storm because I couldn’t unlock the filter mechanism, my irritability and frustration had reached a devastating point.

I ended up breaking part of the vacuum when I slammed it against the kitchen counter. This didn’t surprise me. This is why I had a stress ball that I used to throw against my dorm room in college when I felt particularly overwhelmed. But not since I had broken up with my ex more than six months ago did I feel this overwhelming feeling of frustration and anxiousness that no amount of cleaning or running could alleviate.  Continue reading →

Weightless

Posted in Body Image, Diabetes, Exercise, Mental Health, Personal, Type 1, Women's Health by

Sometimes it can be one look in the mirror. Sometimes it can be the tightening feeling of a pencil skirt. Sometimes it can be that bloated feeling right before the monthly cycle. Sometimes it can be the fact that one hasn’t been on a date in six months. Sometimes it can be the wintry mix outside and the mood it brings.

But whatever it is, it’s not good. It leads to a feeling of failure, of powerlessness over the fate of one’s body. All of those negative, self-critical thoughts come flooding back, and no matter how bright the sun peaks through the blackout curtains, the darkness overwhelms the room.

People asked how it is I lost weight in the past year. My response was always “I don’t know.” A five-hour daily commute. A failed relationship. Depression. Disease. I tried to believe it’s because I finally had a good body image. I listened to my diabetes, and I stayed active (this mostly constituted walking a mile to and from the train every day). Continue reading →

Crumbled Roots

Posted in Mental Health, Personal by

Phoenix-Strathmore-webI stare at what remains of Phoenix, my first and oldest house plant, an Areca palm, now leafless with two short stems and a root practically broken in half. I stare at Norm, my first cat, a two-year-old, who’s been meowing at me since 5am, probably to show me his green reward.

I am reminded of what my roommate said yesterday, “Whoever thought you would have to choose between your plant and your cat?” I had cradled Phoenix in my arms then as Norm had already attempted to cut off its circulation. This apartment seems to be a death wish for houseplants. Out of the six I moved here, only two remain. But I thought for sure Phoenix would be one of them.

This plant has been through everything with me from moving into my first apartment, going back to graduate school, ending my first long-term relationship, and then ending my second. I know I shouldn’t look so much into it, but its presence has always been a staple in my life, and now it’s evident whatever life remained is gone.

How many times have I done this in the past six months? I try for as long as I can to save the green, but there comes a point when I must recognize there is nothing left saving, and I return the crumbled roots back to the Earth. Continue reading →

There Is A Moment…

Posted in Diabetes, Medical Supplies, Mental Health, Personal by

There-Is-A-MomentThere is a moment when the sun hasn’t quite set, when the street lamps are on, but a wasp lands near your coffee cup, when the trees are multicolored, but you have a slight tan line from where your watch was. There is a moment when you stop thinking about work’s next projects and the errands you have to run when 5pm hits, when you stop thinking about travel plans for the holidays and this year’s gifts, when you stop feeling that itch for a run or the desire to binge on Halloween leftovers.

There is a moment when the water in the pot boils over, but you let it run in jagged lines towards the gas stove, leaving white marks in its path. There is a moment when you hurl your continuous glucose monitor (CGM) receiver across the room, and it knocks your foam roll for physical therapy to the floor. There is a moment when you scream at your insulin pump to stop beeping even though it can’t hear you and won’t listen.

There is a moment when you turn your phone off and hide it in the darkest recesses of your bedroom. No one will try to contact you so no one will ever know you did this to disconnect from the world because you are tired of incompetent co-workers, of failed best friends, of family members who no longer return your calls. You refuse to turn on that phone to check the weather for tomorrow, assuming it will be sunny and fallish.

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Burn Out: How to Stay Passionate About Your Work

Posted in Mental Health, Personal, Professional by

Burn-OutIt’s another day at the office. The usual 9 to 5, although ever since I started earning a salary, it’s more like 9 to 6 or 7. I love my job. In fact, in the 10 plus years I’ve been working, it is the first job I have ever loved, the first job I actually respect my co-workers, and the first job I’m willing to dedicate extra time for growth and advancement.

But there are also times when I despise my job, when I am overcome with negative thoughts and I wonder if all my time and commitment is actually worth it. I’ve never been truly valued in any professional job I’ve had. I’ve always been at the bottom of the totem pole. And although I now have two degrees and earning more, I am still young, and still at the bottom. A part of me wonders if this will always be the case, if due to this economy and my age, I’m destined to be at the bottom, forever hoping, but never quite breaking that glass ceiling.

Silly, I’m sure, but we’ve all experienced burn out. I’m usually good until the two-year mark, and then I realize how much I’m not valued, how the benefits aren’t worth it, and how much I don’t care about my performance anymore. So I find a new job or a new career. I’m happy for a while, and then it starts all over again. Continue reading →

I Swing Alone: A Diabetic’s Confession

Posted in Diabetes, Exercise, Mental Health, Personal, Type 1 by
Photo credit: Sandy Hunt

Photo credit: Sandy Hunt

I swing alone. My feet now touch the ground. The figure eight chains are rusted. The black u-shaped seat is worn at the edges. I wonder for how long it will hold my weight. I am much bigger now, but I still love the feeling of when my feet leave the ground. For a fleeting moment, I wonder if they will ever return, and then gravity brings me back to reality. I swing alone. I do not belong here anymore, but I also do not want to leave.

The red and brown leaves fly across my shadow in the direction of the setting sun. I envy their journey, but I do not envy their withered state. They are at the end of their lives. I should be beginning mine, but ever since I turned twenty-two, I feel lost within this body. I feel like it’s slowly giving up on me. From a pancreas that doesn’t work to a series of infections to chronic pain to now an IT band that won’t let me run, I feel like it’s shutting down on me. It’s at the end of this journey, and although I know I have years left, I don’t know what quality that will be.

It will let me enjoy one last swing, but it will not let me enjoy the simple pleasures in life – the simple luxuries our physical beings allow. I cannot eat what I want; I cannot exercise how I want, and I cannot have a long-lasting sexual relationship. My mental state has never succumbed to my body – it’s only succumbed to itself, but how much more can my mind take? Can a mind be free with a useless body? Can a mind truly enjoy life with a body that’s slowly withering away? Continue reading →

Just Another Emergency Room Visit

Posted in Cost, Diabetes, Insurance, Mental Health, Type 1 by

The only time I’ve ever been admitted to a hospital was when I was diagnosed with Type 1 diabetes back in 2009. In the 22 years before then (besides being born), I’d never had any reason to visit a hospital. I’d never had a broken bone, an allergic reaction, or injuries sustained from sports (except for the one time I caught a softball with my bare hand or when I crashed into a teammate while trying to catch a ball in the outfield – she went to the hospital with a concussion; I iced my jammed thumb on the bench).

But upon reading one of the recent Narrative Matters essay from Health Affairs about a doctor’s perception of the emergency department as a patient, I was reminded of the two times I visited the emergency room due to diabetes and how I hope I will never have to return.

I used to date someone who worked in one of the many emergency departments in Cincinnati. I have a brief understanding of the chaos and stress the staff undergoes on a daily basis. I feel for them and have no complaints about how I was treated the two times I had a seizure as a result of hypoglycemia and was sent to the emergency room via ambulance.

But from a patient’s point of view, it was one of the most lonely and degrading experiences of my life, so much so that after my second seizure when the doctor wanted to admit me for further testing, I disagreed and persuaded him to discharge me. Besides the occasional vertigo, I didn’t sustain any injuries from the seizures, but that doesn’t mean I made the right decision. Continue reading →