Much has changed since I started this blog on September 11, 2013. My nonfiction grad school cohort can tell you how much I didn’t want to write about diabetes for my MFA thesis – the book that became the start to this blog. And in the six years since I’ve been diagnosed, I am still learning new things about myself with this disease.
I wanted to share those experiences with the world and contribute to a community of Type 1s. And maybe I wanted to prove to myself that I could manage life given this short end of the stick. What I didn’t expect when I started this blog back in 2013 was where it would take me and what kind of content my readers would inspire me to write.
I cannot tell you much I value your readership and support these past two years. You are the reason I keep this blog going. You are the reason I continue to write. And although this blog has kept me writing and contributing to this online community, I must now re-focus my priorities and take what little time I have to write to devote to other publishing opportunities. Continue reading
It’s hard to feel pretty when I feel like my mouth is the size of a cantaloupe, and I can only chew my dinner on the left side of my jaw. Today I had three cavities filled. I’ve never had a cavity in my life (damn those childhood sealants, which apparently become traps for bacteria as an adult).
I should really stop going to the doctor. This year is the year of medical expenses. Every time I go, even for what I think is going to be a yearly check-up, they find something wrong with me. A part of me wonders if this is some kind of conspiracy, but when my dentist showed me the actual images of my cavity-filled teeth, I knew he wasn’t lying.
The procedure wasn’t as bad as I thought. The numbing shots didn’t hurt, and there weren’t any bad smells, but when I left the office, I was oddly self-conscious of my numb face, and the fact that if the side of my face started to droop, I probably wouldn’t notice. So I spent the 20-minute walk home trying to keep my lips shut and avoid any kind of conversation with passersby.
But how is this different from any other day? I have a 10-minute commute to and from work every day. I’m lucky in that DC sense. And every time I make that trek, I am oddly self-conscious. Are my headphones too loud? Can anyone see my underwear line? Can anyone see my lacy bra peeking out beneath my sleeveless top? Is that bulge beneath my pencil skirt obvious? Are there sweat stains beneath my bra line?
Yet even amongst all these questions, I’m oddly confident. I make that walk like I own the sidewalk, and I never look back. I’m aware of my figure, and how good I look in my pencil skirt. But do I ever notice anyone checking me out? No. Do I ever see people look at me? Yep. And I automatically think there must be something wrong with my wardrobe or my headphones aren’t plugged into my phone and everyone can hear my music. Continue reading
Today, after a night out dancing in DC (I don’t know why the person who never drinks thought it was a good idea to mix three different types of liquor), on another date, I visited Great Falls Park for the first time. This rocky water wonderland is a mere 16 miles outside the city. That is one thing I love about here – you can feel like you’re out in the country yet still live in an urban environment.
But in visiting the Maryland side of the park (and as my date would point out the better, less crowded side), I successfully climbed the Billy Goat Trail (and yes, I use climb for some very specific reasons). I had heard stories of the Billy Goat Trail and how I should definitely give it a try. What no better time than in my hungover state?
For some reason, I imagined this trail was like any other paved pathway, a little debris and uprooted branches but nothing strenuous and then at one point the trail would become a short ledge one would have to maneuver around before getting to the top. Yeah that was what I imagined. Clearly I did not think about the words “Billy Goat” in the name. Continue reading
When my colleague knocked on my office door earlier this week, I could barely keep it together. As soon as she saw the tears and trembling lips, she opened her arms, and then asked what was wrong.
“I don’t know, I’ve been crying all morning, and I don’t even know why. It’s not like I’m hormonal right now.” I threw up my arms and started venting or whining as I often like to berate myself.
There were many reasons to cry, I had deduced, but they all pointed to one thing: I felt like an absolute failure – that I had failed my life, and there was no way to remedy it.
Here are the reasons why I thought my life was a complete failure: Continue reading
I woke up at 2:30 a.m. shaking, while Cosmo, my continuous glucose monitor (CGM) vibrated and beeped at me from the nightstand to my right. I pushed its button, acknowledging the warnings, and saw the screen light up with the number 45.
I didn’t need to check my blood sugar level with my glucometer. My heart was pounding, and the room was blurry. I thought of the orange juice in the fridge but decided to go for the Reese’s egg in the freezer. I knew from recent calculations that this chocolate-covered, peanut-butter filled egg contained 25 grams of carbohydrates (mostly sugar).
That should do it, I thought. Norm, my two-year-old tabby walked into my bedroom and sat on the floor in front of my bed with a quizzical look. The egg didn’t feel like enough even though I knew it was. I checked my insulin pump, which confirmed there was no active insulin in my system. My basal rate was set to decrease from .600 units to .400 at 3 a.m. to account for those middle-of-the-night lows.
I knew I would be okay, but I was still shaking, and my heart was pounding. My body felt weak and depleted, and I craved sugar – the sustenance necessary for instant energy. Earlier that day I had made the mistake of buying a few bags of Reese’s pieces eggs, now 50 percent off in the post-Easter haze. Continue reading
Basal and Bolus are my lifeline, but they’ve recently hit puberty, and their hormones and emotions are all over the place. This does not make life easier for me, and no matter what I do, they don’t listen. I guess I should respect their independence, but sometimes I miss the obedient rates that never questioned me.
I try to be the healthiest person I can be, but there are days when the diabetes takes over. It’s not necessarily a result of anything wrong I’ve done in managing it, but whether it’s stress or hormones, sometimes my blood sugar levels have a mind of their own.
In a State of Flux
Yesterday was one of those days. Since I went off birth control six months ago, I’ve struggled to balance my basal and bolus rates (basal is the long-lasting insulin I take continuously throughout the day; bolus is the fast-acting insulin I take before meals). My insulin sensitivity is constantly fluctuating. Continue reading
Sometimes it can be one look in the mirror. Sometimes it can be the tightening feeling of a pencil skirt. Sometimes it can be that bloated feeling right before the monthly cycle. Sometimes it can be the fact that one hasn’t been on a date in six months. Sometimes it can be the wintry mix outside and the mood it brings.
But whatever it is, it’s not good. It leads to a feeling of failure, of powerlessness over the fate of one’s body. All of those negative, self-critical thoughts come flooding back, and no matter how bright the sun peaks through the blackout curtains, the darkness overwhelms the room.
People asked how it is I lost weight in the past year. My response was always “I don’t know.” A five-hour daily commute. A failed relationship. Depression. Disease. I tried to believe it’s because I finally had a good body image. I listened to my diabetes, and I stayed active (this mostly constituted walking a mile to and from the train every day). Continue reading