Not Another Chronic Condition

I love growing older – there is something about the introspection and wisdom that comes with age that very much appeals to my self-aware self.

With a chronic disease like Type 1 diabetes, getting older also means my body may not be able to manage as well after years of undue stress. The fatigue has been quite noticeable in the past year so much so that I once thought there may be something wrong with my thyroid. But my blood work continues to show positive signs (well, minus the incurable chronic condition).

But diabetes is not the only ailment I’ve had to face in the last 10 years. It’s an issue I don’t often talk about because I am somehow ashamed of its existence. It took me years to feel comfortable telling folks I had Type 1 diabetes. But diabetes, at least in today’s day and age, is somewhat understandable. And there’s scientific proof it exists.

So, what about another incurable chronic condition, that while it has a name in the scientific community, is often dismissed by health care providers because there’s no evidence the pain exists? And just like diabetes, researchers do not know where it comes from or why it exists. But it plagues more than 12 million people in the US (mostly women). Continue reading

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Autoimmunity

It’s hard to live when you don’t trust your body, and no matter what you do, it continues to disappoint you.

Today I found out I may have another autoimmune disease. I was notified by email of my recent lab results. And a short note from my doctor: you have ______. Here are my medication and dosage recommendations.

No call. No explanation. No consultation. All I had was one abnormal test result and potentially another incurable disease that meant I would have to take a pill every day for the rest of my life.

It’s not so bad. It’s manageable. They all said the same thing when I was diagnosed with Type 1 diabetes six years ago. Is this how I’m rewarded? Continue reading