Category Archives: Type 1

Tomorrow I Turn 30 and I Am Jumping For Joy

Posted in Body Image, Diabetes, Mental Health, Personal, Type 1, Women's Health by

I am less than 24 hours from officially surviving the most heart wrenching, traumatizing, emotionally charged, tumultuous, unforeseeable, devastating decade of my life (Jane Austen would disapprove of that many adjectives).

Speaking of Jane, 10 years ago I was obsessed with the movie Becoming Jane (I also had a huge crush on James McAvoy, that is until his overdramatized portrayal of mental illness in Split). Like Austen’s character in the film, I wanted to experience a great love story but then spend my life dedicated to my writing (and writing six of the greatest novels in the English language couldn’t hurt either). Continue reading →

World Diabetes Day: The Election And Some Busted Diabetes Myths

Posted in Cost, Diabetes, Insurance, Medical Supplies, Mental Health, Personal, Research, Type 1 by

Today is World Diabetes Day, and since many people I come across often confuse Type 1 and Type 2 diabetes, I want to take this opportunity to address a few myths about Type 1 diabetes.

But before I do that, I want to reflect on the distress of this past week. I’m not much of a political activist, and I was never enthusiastic about any of the candidates this election cycle. But having come to terms with who our country just elected to represent them, I feel I need to be more vocal (at least about the issues that affect me on a personal level), and I need to be better about standing up for those whose rights are in jeopardy.

That is my personal commitment in light of these election results. I will not judge based on your vote, and I will not give into the hate that is now plaguing our country (although it was difficult not to hate the white heterosexual male this past Wednesday but that’s unfair because I know plenty of white heterosexual males who voted in my favor).

But there’s something you have to know going forward. I’ve written about it a few times on this blog but not in depth. Mostly because I don’t like to give energy to negative entities, and I don’t want to draw myself into contentious battles with fellow family members and friends. And even though I wasn’t surprised by the outcome of this election (you have to remember I grew up in a red, conservative state), I was disappointed. Continue reading →

Low Glucose Alert

Posted in Diabetes, Exercise, Type 1 by

I stretch my legs and sprint down the paved path along the four-lane highway in Silver Spring, Maryland. The sun sets behind me, and the bugs eat at my exposed calves, but I relish this 70-degree temperature. After 5 miles of gravel pathways, wooden bridges, and cracked sidewalks, I only have one more uphill battle of this last mile to conquer.

And then my speed starts to wane. I can’t seem to muster the strength to push myself harder even on this decline. Something feels off. My muscles are tired and weak, and my heart rate is accelerated past the point of normal. I stop at the next intersection, and as the stoplight turns red, I look down at the phone strapped to my right bicep.

Low glucose alert – my Dexcom app reads. Continue reading →

Are We Special? A Millennial Year in DC

Posted in Diabetes, Mental Health, Personal, Relationships, Type 1, Women's Health by

Today a doctor put a scalpel to the skin beneath my left bicep. She removed another birth control method, the last I will try for a while. And although the implant was the best I’ve had, after about six months, it interfered with a cycle that should come natural, and the consequences no longer seemed worth it.

Oh the things we women must endure.

But this isn’t just about reproductive rights for women. It’s about the child I am not ready to bring into this world. I am a Type 1 diabetic. I would not take reproduction lightly normally, but with a chronic disease that could do irreparable developmental damage if I’m not monitoring it carefully enough, I especially do not take it lightly.

After the application of a burning numbing agent, the doctor pierced my skin and opened the wound. I watched with a side view anxious to have this hole repaired. I knew I was making the right decision for myself and my body but I couldn’t help but be abhorred by the whole procedure. What was I doing to myself?

She used her gloved fingers to dig around beneath the skin, and what seemed like seconds turned into minutes. How big is this thing? She asked for help from her assistant. Is it stuck inside me? Will I never be free of this thing that can’t be more than the size of a blunt razor blade? But then I realized she was removing scar tissue from the implant. After all, it had been in my body for almost a year.

And then it was out. As thin as a paper clip, it was no bigger than my pinky finger. And to think of all the hassle that tiny strip caused. Incredible. Continue reading →

Gizmo Meets Evie (A New Kind of Insulin Pump)

Posted in Diabetes, Medical Supplies, Type 1 by

His name is Gizmo. He’s a small thing, about the size of a pager, with charcoal skin…. Gizmo and I are attached by a long string, like an umbilical cord. He’s constantly pumping insulin. Sometimes, he moves to the comforts of my small stomach rolls. Sometimes, he rides along my back. He doesn’t enjoy the hard surface of my legs, and it feels uncomfortable when I tuck him under my arm.

Many of you may remember when Gizmo and I first met or you may remember this short introduction from my book Sugarcoated. But I first met Gizmo back in March of 2012 when I went from injecting myself with pens and needles every day to the transformative wonders of an insulin pump. With Gizmo I never had another hypoglycemic seizure, and I was better able to function on a daily basis without diabetes getting in the way.

But recently I wrote about possibly saying goodbye to Gizmo and introducing a new type of insulin delivery system into my life. Well just a few days ago I took that step. Continue reading →

Saying Goodbye to Gizmo (My Insulin Pump)

Posted in Cost, Diabetes, Exercise, Insurance, Medical Supplies, Personal, Travel, Type 1 by

As much as I love Gizmo, I’m kind of tired of my insulin pump. I know, I know, I shouldn’t complain. Having a $6,000 piece of equipment attached to me 24/7 has been an immense help in the management of my disease over the past four years.

But I am starting to understand why fellow Type 1 diabetics take a break from the pump every now and then and sometimes forever. It’s not easy having something attached to you 24/7. Right now I carry three devices around with me to manage my disease: my insulin pump (aka Gizmo), my continuous glucose monitoring receiver (aka Cosmo), and my glucometer. That doesn’t count my phone.

Gizmo is about the size of a pager. I usually conceal it clipped to my bra strap or waistline of my skirt or pants. The clip is currently taped together with duct tape, and the Medtronic label is practically worn away. I’ve had Gizmo for four and a half years. I’ve only had to replace it once when the battery container froze shut. For the most part I have no complaints.

But lately I’ve been more annoyed with Gizmo than happy. Take for example: Continue reading →

Seven Years With T1D

Posted in Diabetes, Personal, Type 1 by

Today is my seven-year anniversary with Type 1 diabetes. I’m not sure what to say. It’s definitely been a learning experience, and I’m thankful I live in an age of technology where it’s easier to manage this disease but let’s be honest that doesn’t make it easy.

And maybe my diabetes (because I just love to give it its own persona) knew my anniversary was coming up and wanted to send me a big fat reminder of its existence by pushing the limits of my insulin sensitivity and resistance. A lot of highs and lows this past week.

Last night was no exception. Got home from a date with a friend, and my blood sugar was 77 with 0.9 units of active insulin in my system. So I drank some juice and ate some protein to keep it stable throughout the night. But then by the time I went to bed it was 167 and climbing so I gave myself a dose of insulin. And then my CGM woke me up at 4 a.m. because it was 48 and dropping. So I drank some juice. Then I ate some gelato. And then I just said f*ck it and poured myself some granola cereal and almond milk.

But by 4:30 a.m. it was 118 and climbing again. So I calculated how many of those carbs I really needed to keep my blood sugar stable and then gave myself an extended bolus rate over the next hour. By the time I checked it again at 11 a.m. it was 106 and stable.

Happy anniversary to me!

Oh and just for fun here’s a list of the most-read diabetes-related posts on this blog. Continue reading →

The Day My Insulin Pump Outsmarted Me

Posted in Diabetes, Insurance, Medical Supplies, Type 1 by

I stare at Gizmo, my insulin pump. I review its user settings, and basal and bolus rate set-up. But nothing within this gadget tells me how to change my reservoir numbers.

Yes my body is no longer producing enough insulin. And yes that means I must use more insulin to function on a daily basis. My basal rates have increased from .325 to .900, and my bolus rates have increased from 1 unit of insulin per 20 grams of carbs to 1 unit of insulin per 13 grams of carbs.

When my roommate a few years ago told me her basal rates were 1.000 unit, I scoffed and hoped I would never reach that level, at least not for another five years. But now having only had diabetes for six years I am now almost there.

The downside? I’ve been switching out my pump’s reservoir every two days. It used to be that 100 units of insulin would last me three days, if not four. And in the past month, it’s only lasted me two days. Continue reading →

I’m Not Back… But My Pancreas Is (Sorta)

Posted in Diabetes, Exercise, Food, Type 1 by

I’ve decided to take a break from my other writing projects to write this blog post. Because even though I may take a break from my blog, my diabetes does not take a break from my life. And upon learning some unexpected news recently, it seemed appropriate to mention it here.

So I’m not back to regular blogging but I may pop in every now and then.

Another Year in Cookietown

I’ve spent the past week and a half in Cookietown (aka my parents’ house during the holidays). And my blood sugar levels have never been so amazing. I even reached a no-hitter a couple of times (keeping my blood sugar levels within the lines for an entire day). That means no extreme highs (above 200) and no extreme lows (below 70).

No-Hitter-web

So how did I manage this? Well I’d like to think it’s because I’ve gotten better at managing this disease in the six and half years since I was diagnosed. But the real truth is completely based on biology.

Apparently my pancreas is still making insulin. Continue reading →