National Diabetes Month: Wearing Blue Proudly

Carb-worthy ecardNovember marks National Diabetes Month. It includes World Diabetes Day, which happens to fall on the anniversary of insulin discoverer Frederick Banting’s birth on November 14. Yesterday was T1Day, a day for the Type 1 diabetes community to come together and not only raise awareness for our disease, but to provide support.

Yesterday was also my first inauguration into the world of Type 1 diabetes. I have been a Type 1 diabetic for the past five years, diagnosed late at 22, and in that time, I’ve only met a few other diabetics like myself. But yesterday, I volunteered at the Juvenile Diabetes Research Foundation’s annual Hope Gala in DC.

From the start, one of the fellow volunteers asked me if I had diabetes. I noticed the pump attached to her waistband, and for the first time in my life, I truly felt a part of a community. I explained that I had no family history and that I was diagnosed as an adult, as opposed to most Type 1’s who are diagnosed in childhood. But even so, we talked about insulin pumps, about exercising, about being diagnosed, and the everyday balance. Continue reading

Show Me Your Pump

I’ve been a Type 1 diabetic for five years and an insulin pump wearer for two, but I still struggle with putting “Gizmo” out there. Recently, Sierra Sandison’s #showmeyourpump campaign has been trending on Twitter and among diabetes communities. I have to admit I am in awe. For one, I don’t usually wear my insulin pump with my bathing suit because it’s not waterproof, and two, I don’t want the stares and questions.

But now that I have Cosmo, my continuous glucose monitoring system, I’ve had to reconsider. This is something I can’t unplug at a moment’s notice (although as often as the tape stops adhering to my skin, I almost want to). Yesterday, I decided to “be brave,” so to speak, and wear my insulin pump on the outside of my pencil skirt. Not only did it make for easier access, but it reminded my coworkers and myself that yes, diabetes is a part of me, but it doesn’t control me.

In the end, no one commented on it. Maybe they stared, but I didn’t notice. Or maybe they’ve just gotten used to me being a vibrating machine because between Gizmo and Cosmo and my phone, even my boyfriend never knows which medical device is calling me.

A Purse Full of Diabetes Supplies

I don’t like to carry much. I used to avoid carrying a purse or bag. But I also like to be prepared. And with diabetes in tow, it’s hard to do both.

Like today, my blood sugar started dropping once I left the office even though I had corrected the last low two hours ago. I couldn’t for the life of me find my glucose tablets, but I did have Gatorade on hand, so for now, my blood sugar stabilizes.

Here’s what I always carry with me:

Continue reading

Say Hello To Cosmo, My New CGM

The vibrating wakes me up for the third time this night. It’s 3 a.m., and my new continuous glucose monitoring system (CGM) says my blood sugar reads 55. I know it’s a lie. I recently checked my blood sugar, and it was stable at 93. I have no active insulin in my system, but I just started this CGM, which I have decided to call “Cosmo,” and the nurse said it may take a few days to reflect my actual blood sugar. It’s a shame, but in the few weeks that I’ve had Cosmo, I still won’t give it up.

In the almost five years that I’ve had Type 1 diabetes, I’ve thought about investing in a CGM, which uses a sensor to monitor my blood sugar 24/7, but there can be a 20-minute delay since it’s reading my glucose levels from the interstitial fluid (a thin layer of fluid that surrounds the body’s cells), as opposed to a glucometer that reads it from a blood sample. I’ve always erred on the hypoglycemic side – two seizures in my short history as a result.

But in addition to the added expense of a CGM (my health insurance history has not been very consistent), I didn’t know if I wanted a 24/7 reminder of my diabetes. I wasn’t sure I really wanted to know how much two pieces of bread or pasta or ice cream affected my blood sugar in the three hours I didn’t check it with my glucometer. Even though by the time that three-hour period had passed, my blood sugar returned to a normal state of 80-120, it didn’t mean that in that time, it hadn’t spiked to 300 and come back down. Did I really want to know that? Continue reading

Rising Health Care Costs: The T1D Label

I’m nervous about the future of health care in this country, especially for type 1 diabetics like myself. I was diagnosed almost five years ago at the age of 22. I have no family history, and there was no evidence of an autoimmune attack so the doctors do not know why my pancreas just stopped making insulin. But it did.

Many researchers point to a combination of genetic susceptibility and environmental triggers. With the amount of chemicals plaguing our food and our household products, that’s not so surprising. But then why, among my two brothers and a mother and father, was I the only one that contracted diabetes? When I was diagnosed, my parents were surprised, mostly because out of everyone in our family, I was the only one who made a daily, concerted effort to eat right and exercise. What was it for?

This is a question I no longer ask, and I am thankful I have employer-sponsored health insurance that will cover the cost of my expensive disease. But when it comes to health care, I am one of “those” who potentially costs the system. I fall into the “high-risk pool.” From an evolutionary perspective, I should have been weeded out of the population five years ago. But here I am.

Even though I am no longer considered “young and healthy,” I still consider myself “young and healthy.” I manage my diabetes well with an insulin pump. I maintain an A1C of 5.6 (average blood sugar readings over the last 90 days). My average daily blood sugar readings range from 70 to 160. I still have bad days, and if I had a continuous glucose monitoring (CGM) system, I’m sure it would show a higher range, but when you have to survive on animal insulin injections and carb estimations, how much do people really expect you to get it perfect?

I’m thankful for the insurance I have, which allows me to afford my insulin pump supplies, my test strips and insulin doses. There was a time when I didn’t have coverage, when I had to pay for my “life source” out-of-pocket, and suffered the consequences (financial and physical). I’ve endured a health insurance roller coaster in the past four years. Continue reading

Gizmo aka My Insulin Pump Comes Back

It wasn’t a weekend of firsts. It wasn’t a weekend of lasts. But it was a weekend that changed my outlook on this whole “diabetes” situation.

I did more than survive a weekend without Gizmo, my insulin pump. I re-learned the challenges associated with counting carbs and calculating insulin dosages and how to listen to my body.

Sunday and Monday were good examples.

On Sunday night, my blood sugar felt high (159), but not high enough to warrant a correction dosage of one unit (the lowest increment my flex pen will allow). I had a vague recollection my syringes were divided into 0.5 increments. I only needed a 0.4 unit correction dosage.

I looked at the needle on the syringe – not much longer than my flex pen; I could do this. Now how do I get insulin from the vial to the syringe without breaking the needle? The last time I used a syringe was four and a half years ago, right after I was diagnosed.

Apparently, I needed to unscrew the bottom of the syringe to access the plastic extension that would allow me to fill the syringe. I couldn’t fill it to the 0.5 mark. How would I get out the air bubbles? I used the same method I use for the plastic vial I attach to my pump. I overfilled it and then used the extra space to rid of the bubbles.

Now I will just inject myself with the 0.5 increment and dump the rest back into the insulin vial, I thought. However, as soon as I inserted the needle into my skin, I realized how stupid this was, how easily I could accidentally inject myself with all 15 units of insulin. That means I would need to eat 300 grams of carbs to make up for it, which would totally defeat the purpose of this. Continue reading

My Weekend Without Gizmo: Day 2

8 a.m.

I contemplated getting up even earlier this morning to drive to work and pick up my pump supplies, but then I decided it would be more worth it to stick to my original plan and live a weekend with pens and needles.

Today would be a true test, too. It wasn’t like any other Saturday. I had volunteered to plant trees at Farring Baybrook Park with the National Aquarium and TreeBaltimore. The event was supposed to last five hours – that meant five hours in the cold, doing hard, physical labor.

I would need to make sure my blood sugar didn’t drop, but I also didn’t want it to remain high – I didn’t want to feel constantly thirsty and have to pee every 10 minutes. I checked my blood sugar. It read 83.

Wow, I was impressed it stayed stable overnight. I shouldn’t be. After all, I had taken Lantus (long-lasting insulin) injections nightly before the pump to keep my blood sugars stable over a 24-hour period.

I drank half of cup of “green” juice. I didn’t feel like eating. The event organizers promised granola bars, but they would be full of carbs and sugar. How would I take insulin? Wouldn’t I have to take too much insulin depending on the carb ratio? Maybe I would just wait to eat the hard boiled eggs (devoid of carbs and full of protein) I had packed when I felt hungry?

They encouraged us to bring lunch, but I was out of any “to-go” options so I brought a hodge podge of snacks: granola, crackers, hummus, and Gatorade. Continue reading

My Weekend Without An Insulin Pump

When did I become afraid of needles? As a diabetic, this seems like a silly question.

But this past weekend, I decided to put Gizmo (my insulin pump) on the shelf and attempt to live off insulin injections via needles. It wasn’t my initial plan, but after a mishap involving leaving vital pump supplies at work, I decided to test it out.

Gizmo’s been by my side for the past two years. What would a day be like without it?

Day 1

When I twist my needle onto a flex pen I still happen to own after two years that still happens to have effective insulin in it, I feel nervous. I wet the skin around my belly button with an alcohol swab and wait for it to dry. The needle seems longer than I remember. At least it is shorter than my other back-up method – the syringe.

I used to do this for two years before I had Gizmo. Was it really this hard? I’ve never been afraid of needles. In fact, I was the kid who wanted to look when the nurse injected me with my annual shots so I knew when the pain was coming.

I know I’m less likely to feel pain if I inject into the fat around my stomach rather than my muscled thighs, skinny arms, or butt. Yes, but doesn’t my butt have the most fat, you may ask? That’s not something you need to know, but really the reason I don’t attempt this area is because it’s too difficult. Continue reading

Days in the Life

This short essay describing random days in the life a diabetic was first published in Sugarcoated and is part of the University of Baltimore Plork Anthology (2013).

ONE DAY

7 a.m.

The harp string of my alarm wakes me. I remove my insulin pump from the folds of my cream-colored sheets. As I walk to the bathroom outside my bed­room, I clip the pump to my underwear.

In the bathroom, I unzip the black case of my glucometer, insert the lancet into the pricking device and then shoot it into my calloused fingertip. I push the blood from my finger and touch a drop to the test strip. The meter reads 88. A good start.

7:30 a.m.

Before I leave for work, I unclip my insulin pump from the plastic tubing taped to the skin above my waist line. I do not want the exercise from walking to and from the bus stops to make my blood sugar drop.

If my blood sugar is low when I wake up, like yesterday when it was 80, I drink a cup of orange juice before leaving.

It also is easier to manage diabetes with the insulin pump—it administers a consistent amount of insulin over a 24-hour period to keep blood sugars stable. Continue reading