Prior to this day 97 years ago, a future with a diabetes diagnosis looked pretty bleak.
As recently as 1920, doctors gave newly diagnosed diabetics mere weeks (or days) to live. Fortunate patients might break months, or, in rare cases, a year. But mostly, patients would enter diabetic ketoacidosis (DKA) and die soon after their diagnosis. (Beyond Type 1)
Even though I often tout the amazing advancements in diabetes management on this blog and advocate for access to those advancements, it’s nice on occasion to remember how far we’ve come and the transformation breakthroughs like insulin really provided for people like me. Continue reading
Remember that continuous glucose monitor (CGM) that alerts me to severe high and low blood sugar (and coincidentally helps prevent seizures and kidney failure)? Well, it has one fault.
It does not work with Acetaminophen.
This was my CGM reading from this morning, after taking acetaminophen (aka extra strength Tylenol). Continue reading
I’ve recently been in a few conversations with strangers and friends about how much I do on a daily basis to manage this thing called Type 1 diabetes. It’s the norm for me, but for many, it’s hard to reconcile what living in a body that doesn’t “quite” work actually feels like.
In an effort to commit more time to this blog and showcase what life is really like with Type 1 on a daily basis, I’ve challenged myself to post about it once a day for the next 30 days. I’m going to title this series, 30 Days with Diabetes. I promise (with the exception of this one), they will be short posts – some may even show up in photo or video form. Continue reading
If the world ended, and I somehow managed to be one of the few survivors in the new post-apocalyptic world, this is all I would need to manage my diabetes.
When I was diagnosed with T1D I depended on these bad boys to survive.
The world hasn’t ended. And yet this past month, I learned firsthand what life would be like without all of the technology that helps me manage this disease.
Back to Finger Pricks
First, my prescription for the wireless transmitter component of my continuous glucose monitor (CGM) expired. My health insurance company requires a letter of medical necessity, certified from my endocrinologist, every year (you know, because I may be miraculously cured in that time span). For some reason, medical supply companies and doctor offices still communicate by fax (archaic!). Fast forward three weeks from when I put in the order for a new transmitter (I documented the whole saga on social media, by the way), and my transmitter dies. Continue reading
April 24, 2009… diagnosed with Type 1 diabetes
October 21, 2011… first seizure as a result of hypoglycemia (low blood sugar)
January 26, 2012… second seizure as a result of hypoglycemia
March 31, 2018… Many of you have heard this story a million times. I have Type 1 diabetes (T1D). It’s an autoimmune disorder where I must inject myself with insulin on a daily basis to live. I’m lucky to be alive. I’m lucky this is something I can manage.
And yet part of the story you probably haven’t heard is how research and technology saved my life. In the span of four months back in 2011 and 2012, I experienced two seizures – one at the Baltimore/Washington International Airport and another at the Orlando International Airport (at least I’m consistent). I’m not only thankful for the TSA officials, EMTs and strangers who looked out for me on days when my troubles could have easily been dismissed, but I am thankful I had these experiences.
Because they led me to Gizmo. Continue reading
Note: this is a follow-up to an earlier post on Being Adventurous with Diabetes.
In early November, I texted one of my best friends, asking her how she would like to celebrate her upcoming birthday.
Her response: whitewater rafting.
Her birthday was in three days. It’s something she’s always wanted to do. She had a different start to her adult life – had to grow up way too fast and missed out on what some of us call the “fun” from our early 20’s. So, now that she’s hit 30, she’s trying to make up for it. I don’t blame her, and after the year she’s had, I want to support her. Except…
I am terrified of whitewater rafting. Honestly, I’m terrified of any water that moves (yes, I acknowledge the oxymoron in that statement, but let’s just say kiddie pools don’t count). I experienced a few “almost” drowning incidences as a kid, and that ruined any dreams of being The Little Mermaid. But I wanted to support my friend, and ever since I ran that 5K in October, I’d made a commitment to myself to be a little more adventurous. Continue reading
The holidays are always a tough time for someone with Type 1 diabetes. I’m constantly surrounded by holiday treats and carb-heavy foods. Holiday parties tend to be the worst culprit.
This could be why I’ve been a bit anti-social lately. I don’t want to be tempted. This past year, managing my blood sugar levels became increasingly more difficult. Maybe it’s because I’m older and my body is less resilient? Maybe it’s because I “cheat” more than I used to? Maybe it’s because I’ve had this disease longer, and it’s starting to take its toll on my mental and physical health?
Maybe all of the above? I recently took out a life insurance policy. That felt weird. And although I do my best, I know there is no guarantee with this disease, and in case anything terrible should happen as a result, I want my loved ones to be taken care of. But in the meantime, I’m still rooting for me. Continue reading